An in-person workshop event bringing together people to discuss, share ideas and co-produce some guidelines to improve ethnic diversity of participants involved in aging and dementia research.
This project is led by Dr Natalie Marchant and Professor Anna Cox at UCL, in collaboration with Noclor, the Race Equality Foundation and community members. It takes place on 21st May from 9am-1pm near Tottenham Court Road tube station.
It is well-documented that people from ethnically-minoritized groups, including people with Black and South Asian heritage in the UK, have poorer health outcomes than people of White heritage. For example, compared to the White UK population, ethnically-minoritized groups have a higher risk of developing dementia, develop dementia at a younger age and have poorer outcomes after diagnosis of dementia. Yet, people from these communities are hugely underrepresented in research.
We need to know how to work collaboratively with multiple stakeholders to improve the inclusion of people from minority ethnic communities in ageing and dementia-related research. We intend to generate guidelines that articulates what works to address the challenges experienced and why.
The project is looking for people from a Black or South Asian background who have been affected by dementia but do not have dementia themselves, for example having a close friend or relative with dementia and community groups who support people from Black and South Asian backgrounds. People must be aged over 18 and able to understand and speak English.
The event will involve learning about the latest developments in ageing and dementia research, taking part in mini-workshops and group discussions, having chats with researchers, learning about how to participate in research projects and explore ways to improve your brain health. Refreshments are provided, this is an opportunity to have your voice heard and make a difference to the way research is done.
Please register your interest here for more information.